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Shawn, originally New Yorker, transported to Tennessee for a few years, chased the love of his life in Iowa, only to move her back to Tennessee. Rachael, small town Iowa girl that traveled the globe to find her love in Tennessee. Little did we know how much our lives would change when Little Miss Magdalyn Joy entered the world. Join our journey through the unknown of Maggie's medical issues, known truths of God, and the nuts and bolts of life.

3.23.2013

Another trip in the books

Katie and Mags
Maggie and I made another successful trip up to Connecticut. This time it was just the two of us.  What a tremendous little traveler she is.  We stayed with some friends in Pennsylvania on the way there and back.  So much fun to be able to hang with the Smith's in the middle of our journey.  The girls love to love on my little girl!

We also swung by and saw Cousins Amelia and Quin.  Maggie was all chuckles for Quin for a while.  Amelia was trying to not take it personally.  We all couldn't help but laugh when Quin was able to get her smiling up a storm.  As always, it was great to see them.  Maggie adores both of them, and I think the street runs both ways on that one.  Aunt Rachael always enjoys the time too!
While at Center of IMT, we really got to some big projects and what I would say is the meat of a lot of it.  The majority of the time was spent treating her noggin in some form or fashion.  They worked on balancing her neurotransmitters (which GABA specifically relates to her new med as well).  Some intercranial work was done through her mouth.  Lots of time was spent at the occiput and occipital lobe, releasing some of the pressure and tension surrounding this region.  They also worked to increase her bloodflow (both into and out of her cranium).  Lots of big projects that are quite significant.  Over the next couple of weeks we anticipate continuing to notice changes as her body works to assimilate everything.  Work was done to allow more lengthening for her spine, and I'm pretty sure she grew an inch of two overnight (maybe not that much, but she did get a little longer!)
Thanks Mom for putting coconut oil in my hair!
Sporting the spiky hair
Unfortunately we are still seeing the spasms and waiting for that to get all regulated.  There is a tricky balance with meds and therapy and how everything works together.  Too much medicine makes systems very sluggish, but not enough is not good with uncontrolled seizures.  There is no doubt in my mind that therapy has helped tremendously in the overall seizure picture, allowing for less med dependency.  But these new spasms we don't quite have a handle on yet. We did start the new medicine, and are just now up to the full dose.  We should know within the next couple of weeks if this med is going to be effective or not.
Chillin at the hotel one night!
For now, we'll keep on keeping on.  It's great to be back home with Daddy and those crazy doggies!





P.S. It's a little bit shorter post since it's time for this momma to get some rest!

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