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Shawn, originally New Yorker, transported to Tennessee for a few years, chased the love of his life in Iowa, only to move her back to Tennessee. Rachael, small town Iowa girl that traveled the globe to find her love in Tennessee. Little did we know how much our lives would change when Little Miss Magdalyn Joy entered the world. Join our journey through the unknown of Maggie's medical issues, known truths of God, and the nuts and bolts of life.

11.07.2013

The Grow and a go, go, go day!

Yes...that's a bunch of weed drying behind us.
Daddy made it to meet up with us.  It's great to all be together again!
Literally, he parked the truck and trailer and hopped into the suburban with us to head to Colorado Springs.   There were a few different things we were meeting up with other Realm families for, but the entire day seemed like we were late for this and then late for that.  As great of a day as I had expectations for, it kind of left me disappointed.  Maggie was struggling with day 5 of no poopies, which caused for a cranky little girl.  Finally, mid afternoon yesterday, she was able to take care of that situation, but after that many days it proves to be a whole painful ordeal.  Then she was starving which where we were at the grow was not the most conducive for that.  Needless to say, she was not camera friendly yesterday.  There were a couple of news stations following the group around, and the daytime show The Doctors.  I think we managed to avoid most of the cameras with being late to everything and the little fussy butt!  There were plenty of other families there sharing their stories though.
All in all though, it was great seeing the grow and hanging out with other Realm families.  As you can see from the pics, the process of becoming Maggie's medicine is definitely a process.  Not a marijuana connoisseur, it was rather impressive seeing all the various plants and seeing the process, not to mention the aromas.
The best part was talking with and hanging out with all the other families.  Though we only briefly met some of these families when we first came out and all correspond on facebook, it's like seeing old friends, embracing one another and so excited to be on this journey with each other.  Hearing the stories of the results families are already seeing that have recently started the oil is SO encouraging.  We will all have stories to tell, and these stories are going to be the ones that change the laws.
I'll share just a couple:
A boy that wouldn't engage or string more than a couple of words along, sits in the car and tells his mom, "looks like it's just you and me mom" and is now constantly pointing out the window, "oh...look at the trees.  See that mountain"  He has smiles and is able to engage and play with his brother now.  He has only been on the oil for maybe 2 weeks, and the best part...Yesterday he was 48 hours seizure free!!
A three year old little girl that has spoken much of anything for the last year and a half said "Mommy" the day after starting treatment!
Encouraging, eh?  AMAZING!!!  Disclaimer: As encouraging as this is, it could also get worse before it gets better.  We could also experience a honeymoon period and then get yucky before it builds up in her system.  Basically...I just try not to have any expectations of what's going to take place.  I am preparing myself for it to get worse first, but would love to be pleasantly surprised with results like these.
So, where are we in the process?!?  We had a little hang up with the red card not getting to us so our original order for oil was canceled, but then, once we were able to track down the red card,  I resubmitted the order and was able to be back within the original batch.  We were supposed to be able to pick up the oil yesterday afternoon, but the lab results (all the oil is tested before we get it) were not back yet.  So, crossing our fingers...we should be getting it today!!
We have a couple of news stations that want to follow us and document our journey, so they will be joining us for a portion of our day too today.

Last night, we rushed back to Denver and joined our new small group at church.  It is great to have a new church family already loving on us and supporting us.  God truly has been in the details of orchestrating this situation so we wouldn't be floundering.  The small group seemed to be a great fit and we can't wait to get involved!!

As for housing, we are in an extended stay currently.  We only have to survive the next month or so of being on top of one another without killing each other.  Good luck with that, right?!  We should have housing available to move on-campus December 15th.  It ends up that we will be having a little bigger apartment than we initially planned, which means we will definitely have room for visitors!!

3 comments:

  1. So glad you're all together again. And, I love seeing the Lord at work in all the little details!

    Beth Anne

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  2. We are praying for you, and miss you.

    Mark L

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  3. Is it the THC or CBD that will help your child? More likely it's CBD and you can now get it in nearly pure form (no THC at all since it's made from hemp, not marijuana) and federally legal from RSHO. We have been giving it to our son who has Fragile X Syndrome for almost 3 months now with amazing results. Don't wait for your red card, check out Real Scientific Hemp Oil instead. If it works you can move back home to be with the rest of your family.

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