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Shawn, originally New Yorker, transported to Tennessee for a few years, chased the love of his life in Iowa, only to move her back to Tennessee. Rachael, small town Iowa girl that traveled the globe to find her love in Tennessee. Little did we know how much our lives would change when Little Miss Magdalyn Joy entered the world. Join our journey through the unknown of Maggie's medical issues, known truths of God, and the nuts and bolts of life.

12.15.2012

Lots to mention

7 months old today!! And a tooth coming in!! This tooth is proof that my little girl is growing up. Maggie has been a little vocal about this tooth. Momma's not so thrilled about the idea of teeth either. :)

Many little elves were busy today wrapping presents as a fundraiser for sweet little bug. The "Wrapped in Love" event had a fairly steady flow of gifts coming through. Maggie and I were even able to swing by for a little visit. It was wonderful to see a ton of special people in our lives all together, working to help us out. What a tremendous blessing these elves are!! A huge thank you to all of you!

Our trip to Iowa was good. It was quick, but we did get to spend some time with most of our loved ones. This trip didn't allow for visiting many friends. We did have good time with grandmas and grandpas and aunts and uncles. Plus, we were able to swing by Heritage for sweet moments with teacher friends!
The reason for the trip...Shawn's doctor appointment. Basically, they confirmed there are residual issues, in his lower back and neck from the fall. One interesting thing she found was that Shawn doesn't have any sensation on the back side of his upper right arm. Based on what she found, he will probably be getting an appointment with a neurosurgeon for an evaluation. So, that saga continues.

While in Iowa, we "tried" to get the bank account setup to be Maggie's account. More hoops to jump through with that because I didn't have her SS card with us. I was quite frustrated walking out of there, because every little step, that shouldn't be that big of deal, seems to be such a hassle amidst all we are dealing with. But, we did have a glimpse of God in the middle of it all, reminding us that He does have us in His hands. I had a handful of checks from people with us that I needed to cash and wanted to use to payoff the initial payment for this round of treatment. When we totaled up all the checks, it was exactly $2 short of the needed payment. Really?! He is taking care of us!

Point of clarification about what's covered for Maggie medically. I want to make sure we are not misleading at all. As of now, insurance has covered all our hospital stays and tests, all but a few prescriptions (depending which pharmacy we have them filled at), and therapy that is in state (occupational, physical, and speech-coming soon). However, our trips to Connecticut are out of pocket. This is the intensive therapy that has proven to be the most beneficial of anything for her. Luckily for us though, our physical therapist (covered by insurance) performs the same Integrative Manual Therapy. Piotr is able to continue her care plan with our visits to Knoxville twice a week. The intensives allow for concentrated work to make more progress. (And hopefully continue to get her out of the woods as far as being "critical").

And so we begin another journey to Connecticut. This time Nana Selmeski is escorting Mags and me. We are driving as we speak and she'll have therapy Monday-Wednesday. We're excited to see what progress she makes this time.

And finally, my sister updated some bows on the site. Order by Monday, December 17th to get them in time for Christmas. There will also be more added to Etsy site soon.

2 comments:

  1. What is the website for the bows, etc.? Perhaps I missed where it is listed.

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    1. Sorry that I am just now seeing this comment. You can get to the etsy site through www.miracle4maggie.com

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