About Us

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Shawn, originally New Yorker, transported to Tennessee for a few years, chased the love of his life in Iowa, only to move her back to Tennessee. Rachael, small town Iowa girl that traveled the globe to find her love in Tennessee. Little did we know how much our lives would change when Little Miss Magdalyn Joy entered the world. Join our journey through the unknown of Maggie's medical issues, known truths of God, and the nuts and bolts of life.


Back to Vanderbilt

Here we find ourselves in Nashville again. Just for some doctor appointments (so we hope)
This past month has completely been an up and down all around rollercoaster. Most of it is "typical" baby stuff. Except everything with Maggie has a few extra variables in the equation. Trying to know how to best meet her needs and comfort her has proven to be exhausting. I thought yesterday was a turning point, better spirits, good naps, etc. and then last night hit...fussy is an understatement. Her core was so hot it was difficult to cool her back down. Luckily the fever broke and began creeping back down. My mom has been here the past week. All three of us (Shawn, Mom, and myself) were diligent in trying to lower it. However, her sensory seeking needed to feel safe with something covering her amidst us stripping her down. Finally, we were able to comfort her and she was able to get a little bit of sleep. Not so much for Momma or Grandma. By the time she was calmed, it was time for us to be getting moving for our busy day.
We had therapy in Knoxville this morning and then got to Nashville just in time for her GI (gastrointestinal) appointment. Unfortunately our at risk little lady has dropped into the 2nd percentile for weight. That's not so good. The doctor scheduled us for a swallow study just to check how all the mechanics are working. She also wants us to get bi-weekly growth checks again. Woo-hoo...another thing on the schedule. Not like we aren't coming and going enough!
So, tomorrow on the agenda...
8 am-swallow study
10:30-EEG study
1:30-neurology appt
Daddy meet up with us and take us home. Say goodbye to Grandma and send her off back to Missouri.
All weekend long-REST, REST, REST
Maggie and I already had a little discussion that she needs to be on her best behavior so that this snapshot of what's going on is good! I'm not convinced it will go that smoothly. She has definitely had some issues this month. Plus, these stinkin' teeth have already proven they are going to wreck as much havoc as they can.
If you could say a few prayers for us, we would appreciate it for these tests. Also for little miss to start packing on the pounds. And for momma and daddy's sanity!
I've noticed I am starting to default to my sinful, short, sharp, and critical self. Probably a slight dose of depression for both of us as we feel oh so helpless too. As I learned a few weeks back from a friend, "Lord, renew a right spirit within me!" is on my lips regularly (and probably should be even more often)

Little Miss is 8 months today. I told here we can go back to the moving forward this month and we can all forget about month 7.

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