|Getting Maggie set up. She was letting us know she was still hungry!!|
She got a little catnap while we hung out in the hospital cafeteria. I woke her from that so she would still be tired for her Sleep study. We headed up to that. She was a little fussy as we started to get her hooked up, but as soon as I wrapped her in her swaddle sack she was content and went into a very peaceful sleep! Couldn't have asked for it all to go any smoothly. Once that was done, back to the cafeteria to kill some more time. Daddy also met up with us. Maggie had such sweet smiles when she got the chance to snuggle with Daddy.
|All too familiar of a picture, but she has a lot more hair this time around!|
Oh...another exciting things is that we get to be completely done with one of the meds. We have gradually been weaning it and now we get to say farewell to the Trileptal!!! 1 anti-convulsant down, 3 to go...In a couple of weeks, we will begin the wean from the Clonazepam, which I anticipate to be the most difficult wean. It's a tablet, so there are only so many increments we can make. It is also one that her body easily could have become resistant too, but dependent on. So, I expect things to get a little worse before they get better, but we'll see how it goes here in a couple of weeks.
I think anxiety was playing a big role in my emotions leading up to the appointments. Knowing she was not doing well from a clinical perspective and anticipating the worst with the EEG. Praise God that I was pleasantly surprised!! In regards to her growth, I am not terribly worried. Yes, I am concerned, but it completely makes sense to me. First of all, throwing up for 3 weeks, not only did she not gain, but she also lost weight, so that threw us off the curve right away. She actually had been gaining fairly decently after that, but the last month, not so much. Given all the other variables the past month, once again, no surprise to me. Plus, we delayed starting solids for a little bit. Most babies start at 4-6 months, and we just started at 7 1/2 months, so that explains a lot too. I think the concern from the GI doctor about her weight is good, because I have now created a game plan and am motivated to implement a very intentional progression of solids into her diet. Due to continued constipation, we are backing off the bananas and introduced pears today. Hopefully they will help get things moving better and then we will keep adding in a couple of days.
In a nutshell, appointments went well and Maggie was on her best behavior. We are taking her month 7 off the record, given it wasn't that pleasant, and we are going to start moving forward again, now that she is 8 months old!