We are home and getting settled back in. I got the text, "you up for visitors?" Multiple times yesterday. It was a blessing having others here to love on baby girl throughout the day. She was exceptionally smiley and cooing for quite awhile with Ms. Natalie and Nana.
For a summary of where we are...
Maggie is still vomiting. I will continue to search for trends and document to try to find any patterns/correlations. We have to monitor and watch for dehydration, and go to our PCP weekly for growth checks to make sure she doesn't lose too much.
We're working hard to try to gain more neck control to hold her head up.
Momma is working on drafting up a letter to send out around the country to seek further support and information. It is my prayer that we can find someone in Integrative Medicine which will look at Maggie as a whole AND have the knowledge and skills to treat her as needed.
Gotta go for now...she just threw up and we need to get cleaned up.